Wednesday, February 20, 2013

Tumblr: An Urgent Cancer Support Group

What's This? This story was stated in partnership with Storyboard, Tumblr's home for unique writing. "Cancer," Jason Pike wrote in his first post last April. "It fucking sucks and it's difficult to explain." After noticing a diagnosis of throat cancer meant surgery might temporarily take his ability to talk, Pike, a Chicago businessman, considered blogging as a way to keep friends and family in the trap on his advance. "As many cancer patients may admit, the act of treatment and recovery is boring as hell," states the 30-year-old, who blogs at Confirmed Unfinished. "There I was, lying in hospital rooms on powerful painkillers, sitting in waiting rooms expecting my everyday radiation therapies or lying on my couch watching the same symptoms of the same shows over and over. Add to that the full total of being in pain, scared of dying and unable to talk, and my character as an expressive artist, and it had been shockingly easy for me to keep [the blog] updated.a Tumblr became a location for Pike to explain his particular journey through the "sometimes-gritty, sometimes-triumphant day-to-day action through disease," he says. However the real pull turned out to be the unexpected community of cancer patients like him. Once Pike started including tickets like "cancer," "synovial sarcoma," "cancersucks" and "radiationa on his posts, he attracted other people who followed, mentioned and read. Relationships formed. Some turned solid connections. Like him, many just wanted to know "they were not alone in such a terrifying, ludicrous situation," Pike says. That is how he achieved Mandy Johnston, a California blogger who started currently talking about her knowledge with cervical cancer within days of her original examination. And Julieth, a Colombian blogger who anonymously documents her struggle with kidney cancer. For Julieth, Tumblr was an emotional to produce ' a safe spot to put the depression, fear and anxiety, with no fear of being judged by family, friends, if not future employers. "I was scared to death, and I wanted to put that experience somewhere," she says. But also for Johnston, the method was more public. Before her formal analysis came, she had visited many medical practioners to find out that which was happening with her body. She discussed every step of the process with among her best friends, via Google Talk; Tumblr's fast pace a' an advantage when working with the day-to-day of cancer treatment a' felt a natural match. aYour very existence feels like it's at a standstill as you wait for a health care provider to call, or test results to can be found in, or the chemo trickle to eventually stop," she describes. And therefore the weblog was catharsis. "Iave often had a need to write when my world doesnat make sense. Usually the ideas just turn and tumble in my own brain." "Iave always had a need to write when my world doesnat sound right. Otherwise the views just spin and slide in my brain." Initially, she didnat discuss the blog, Pappenstance, with anyone besides the friend who'd prompted her to begin. But like Pike, it absolutely was the cancer-related tickets that led her to others a "kindred spirits," she calls them a' have been blogging their very own way through cancer, and supporting each other across the way. "Weare all younger, maybe a bit edgy, often looking for the bright side of this circumstance place found ourselves in, but in no way being Pollyannas about it," she says of the tight-knit community. Pike and Johnston are now actually finished with treatment, and although they both have their share of follow-up visits, they've had the opportunity to maintain their friendship outside of Tumblr a'over the Web, of course, because they live tens of thousands of miles apart. Blogging about medical issues isn't without its limitations, needless to say. And, while there are plenty of supporting relationships forged, writers explain an astonishing number of individuals who migrate communities and fake their illnesses, also. Some imagine they've a modern, web-dependent version of Munchausen Syndrome a' "Munchausen problem by Internet," it has been called a' characterized by people faking a disease and utilizing the web to dupe the others into sympathy. The most convincing of these fakers should go to extreme lengths: deeply researching their selected ailments and sometimes even shaving their heads to make it appear to be they have undergone treatment. ("Munchausen by Internet," it must be mentioned, isn't a formally recognized disorder in the DSM, the diagnostic manual of the American Psychiatric Association.) "It is frightening how popular this type of thing is in this day and age," states Taryn Harper Wright, who runs the Warrior Eli Hoax Group, a blog that works to show these individuals. The blog is termed for an elaborate hoax perpetrated by a fictitious family was invented by a 22-year-old med student who coping with disaster and illness and put up numerous fake social media marketing pages to attract people in. "I think at this time I've outed about 13 fakers," claims Wright, who began the blog last Mother's Day and suggested writers to trust their instincts when creating connections with fellow cancer patients online. aBe a discerning customer and don't ever feel bad for questioning a story." While itas hard to know very well what might encourage someone to fake a diagnosis, Pike is quick to provide compassion. "These people, at the end of every thing, are human and deserve support, the exact same way that true cancer patients do,a he says. aCancer taught me all sorts of clichAd issues, but foremost included in this is empathy." And therein lies the potency of the cancer blogging group a' sympathy, honesty and real human relationship. "Tumblr builds catharsis. People web log simply because they want their comments to be heard a' therefore inform them youare listening." Photograph courtesy of Dominic Butchello/Tumblr

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