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Our immune systems are designed to protect us from microorganisms, bacteria and viruses, but especially those with the auto-immune disease lupus, experience something completely different.
"Your immune system turns upon you, so it's attacking every organ from your body or every tissue of one's body, potentially: your middle, your lung, your minds, your kidneys, " shows Margaret Dowd, the executive director of the SLE Lupus Foundation.
It took Nono Osuji a few months of medical visits, tests and outright worrying before doctors learned that was what ended up being happening in her entire body.
"At that time, I am like covered in rashes, my hair is receding, I'm burning, I'm never sleeping. I'm fatigued, nevertheless, " Osuji says.
Since her diagnosis a couple of years ago, Osuji has volunteered with the SLE Lupus Foundation, accommodating bring more awareness with the disease that many times targets women like her.
It was subsequently Osuji's purple-colored rashes on her behalf skin, which have left scars behind on her behalf arms, that helped clinical professionals diagnose her when your lady was 28. But don't assume all person gets rashes and the inflammation she expert.
Thanks to federal dollars and many partners, SLE's Lupus Homework Institute created the Lupus Gumption, a program designed to better train doctors and medical researchers about the disease, with the objective of greater early detection.
"The curriculum is incredibly thin in medical colleges, both for lupus in addition to autoimmune disease, " Dowd tells. "One very well-known lupus physician told me, 'If you sleep within a morning in med the school, it's unlikely you'll ever be capable of know about lupus. '"
Osuji still struggles along with the disease, but she says knowing that it must be lupus at work has empowered her to get proactive about her well being.
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